Friday, September 14, 2012

Another Update

I've been struggling to know what to write. Do I want to describe the step-by-step progression of the disease? It's sad and hard for us, let alone for others. And Mom instructed me a couple of days ago that I wasn't to put anything sad on the blog, because it makes people sad. :) So I wonder, what details should I share, while still protecting Mom's dignity?

Yet I realize we have many friends and family who love us and support us. So I will do my best to share to help you pray with us.

Truth be told, we need the presence of Jesus with us through these days. It's getting harder. Mom's been having more bad days than good days. The disease is progressing. Mom is having a harder time getting around, and more days of nausea and pain. Her voice is softer, and she just doesn't have that much energy.

Last week Thursday (Sept 6) we had a meeting with CCAC (nurses, nurse manager, case manager) to discuss Mom's care in the upcoming weeks. They told us what services were available. They also arranged to have an Occupational Therapist come in, with the result that on Wednesday a whole bunch of new stuff was delivered: a walker, bars for the toilet, and a new mattress for her hospital bed. This is a mattress that has air in it, so it is much more comfortable.

Yesterday (Thursday) wasn't a great day. Mom was very nauseous, so she took some gravol, but it made her fall asleep while she had visitors. She felt bad about that, but there was nothing she could do about it. I talked to her on the phone last night, and she told me she is getting tired of moving her books and ipad around when she goes to take a rest in the bedroom, so she wants to move the hospital bed out to the living room. Dad and Aunt Wilma are planning to tackle that today. Mom will be able to watch her birds in the living room. Mom has two bird feeders on the front bay window, and several more hanging in the trees nearby. It's always fun to watch the birds.
Thanks for your prayers,
Jeanette







2 comments:

  1. I suppose when you share those intimate details and the not-so-joy-filled moments, you do run the risk of invoking a sad response from your family and friends. Yet, when we read your words of truth and struggle, we can appeal to God for the strength, joy, and energy your family needs. Lamentations 3:19-23 was underlined in Mom's Bible... may those words bring you some comfort today. Here's hoping that whatever joy-filled moment today, even a laugh over something inappropriate (in your family?!), will outweigh the darker moments. spot

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  2. yes it makes us sad Jeanette( & Tina) , but that's a reality of life...much worse for Tina & Bert than for most of us!
    Life is not enjoyable for Tina, does she wish for it to end? Be assured we think of/pray for/and whatever people do in these circumstances...
    Ena

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